Sunday, May 13, 2012

Happy Mother's Day

Unfortunately chronic fatigue and its kaleidoscope of symptoms doesn't' seem to take your requests on when you would prefer to have a good day.  Trying to make it to the 10:30 Brunch was not going well - at 8:30am I was up and suffering from stomach pains alternating with being starving again.  To put it discreetly I made many trips to the W.C. - the French have such a more elegant word for bathroom.  By 9:30 am I had managed to eat before I went to the brunch determining it best to just have something simple.  As we entered the Racquet Club, of course it was hot and stuffy, despite my constant complaints that you need the air set low when you have a brunch filled with omelet stations, warming dishes, and the dining room filled to capacity, someone just never seems to be able to solve this simple problem.  Then the smell of food overtook me, and after saying hello to my mom, sister, cousins and aunt I managed about 5 minutes before I had to go sit outside and get some fresh air.

Again, the good news, I didn't have to flee - I just needed some air, small sips of water, and time to regain some strength.  After about 20 minutes, I was able to go back inside, and catch up with my family and enjoy the remainder of the early afternoon.  Its a frustrating thing not understanding why now and being fairly helpless to do much to feel better.  But instead of my normal self irritation, I took this a bit more in stride, did the best I could and chose to take my own advice...the bird was in my hand....there was a wonderful quote that was in Sue Jackson's article about living with CFS taken from the link in my previous post - and sums up what I was thinking....
"Our life now is different than it was before CFS, but it’s still ours."  - Sue Jackson

My Mom, Nephew George Patrick and Neice Addison

The other sister Brooke

Happy Mother's Day 

Day Late

Apparently yesterday was CFS/ME Awareness Day....I'm not there yet getting deeply involved in the awareness, research, etc...doing my blog is my fist step - and I hope to get there and get there in an important and valuable capacity in the coming years - until then - thank you Sue for your constant informative posts - so I will add it here -

Taken from Sue Jackson's Blog
Sue's Blog

SATURDAY, MAY 12, 2012

International ME/CFS Awareness Day 2012

Today is International CFS/ME Awareness Day. Whether you have ME/CFS or have a sick friend or family member, here are some simple things you can do to help educate the world and help promote research for CFS, even if you can't leave your house:

  1. About CFIDS by the CFIDS Association
  2. An Overview of Chronic Fatigue Syndrome by Phoenix Rising
  3. The CDC's information on CFS
  4. My own article, CFS: An Invisible Illness, published last fall on Lively Woman
  • You and your friends and family can also donate money to help fund badly-needed CFS research. I know the economy has been rough lately, but you could always do what we've done and just switch some of your charitable giving from other organizations to the CFIDS Association or other ME/CFS organization of your choice.
  • You can also donate to CFS research without spending any extra money by using a shopping donation site or links like:
  • CFIDS Association's Shop and Give links
  • You can even earn money for CFS research when you use a search engine:
Happy Awareness Day!  Help to spread the word!

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